A Valentine’s Day Reminder: The Journey of Parents with Children Who Have Congenital Heart Defects
Today, as we celebrate love, let’s take a moment to reflect on the strength and resilience of parents whose children are born with congenital heart defects. For them, love is a quiet, powerful force that carries them through unimaginable challenges. These parents wake...
Story of Piper Learns to Fly
I’m Joe Schroeter and have had the honor of working with Jessies Heart Foundation, JC Heinen itsfounder and Kathy Lawless one of its key board members for several years. My involvement came inpart from my experience having a son with a congenital heart condition and...
Alex Speaking at Jessie’s Heart
Alex Schroeter, who was diagnosed with Long QT Syndrome in 2016 had the pleasure of being a speaker at the Jessie’s Heart Leadership Conference. I, his father was proud standing on the stage with Alex and his mother as he shared his experience with the event of his...
Beyond the Heart – A Family’s Journey with Congenital Heart Disease
Moments after you discover your child is born with a congenital heart defect, come the waves of emotions, instinctual responses, medical information and terminology, and subsequent confusion. Though your child is alive, fear, grief, and sadness crash into a family...
Why parents should know about Long QT Syndrome (LQTS)
Long QT Syndrome is a genetic disorder that is inherited and can cause heart rhythm irregularities and sudden cardiac death(SCD). Kids with the disorder have a longer than normal QT interval. In other words, their hearts takes longer to recharge between heartbeats. ...
Jessie’s Heart Newsletter
Meet the families you help through your generous donations. The Jessie's Heart mission is to provide support for children with heart disease that reduces emotional, physical and financial stress for the family. Your Donations Making a Difference Meet Katie who...